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J Neurol Neurosurg Psychiatry 1997;63:275-278 doi:10.1136/jnnp.63.3.275
  • Editorial

Services for patients with multiple sclerosis

  1. D T WADE
  1. Rivermead Rehabilitation Centre, Abingdon Road, Oxford OX1 4XD, UK.

      The development of β-interferon treatment for patients with multiple sclerosis has dramatically focused attention on and encouraged debate about the delivery of services to these patients.1Furthermore, patients with multiple sclerosis are now more interested in seeing their neurologists; the reverse is also true and all parties are interested in service provision. The purpose of this editorial is to inform the debate about services for this group of patients; it is biased towards considering disability services.

      My aim is to enable purchasers, providers, and patients to discuss issues from a common, agreed perspective. I highlight some current problems, and then outline some principles underlying choices, present a framework of illness, discuss the processes of disease management, draw attention to the different phases of the illness caused by multiple sclerosis, and finish by outlining the aims and objectives of a service and discussing the organisation of services. I do not review, systematically or otherwise, all relevant evidence but cite evidence where possible. I argue that the problems faced by patients are complex and multifactorial, and that there will rarely be evidence to guide decisions on the specific problems faced by individual patients. Thus the conclusion is that the most effective and efficient service delivery will come from specialist services which focus on neurological disease and disability.

      Current problems

      There are two areas of agreement between all interested parties: the challenges posed by multiple sclerosis are important;2and the challenges are not currently well met.2 3

      Multiple sclerosis undoubtedly poses an economic challenge to the Health and Social Services of all western countries.4Although the incidence is relatively low, the prevalence in most western countries is high.2 5 More importantly at least half of all patients are significantly dependent upon others for mobility and other activities,2 and patients …

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