Article Text

PDF
L09 Social Work In The Chorea Huntington Ambulanz UniversitÄtsklinikum Ulm - Germany
  1. E Sonnenfroh
  1. University of Ulm, Oberer Eselsberg 45/1, 89081 Ulm, Germany

Abstract

Background The care of patients with Huntington’s disease (HD) requires a multidisciplinary approach involving a wide range of services that can support the individual in each stage of HD as well as addressing the needs of those around him. A multidisciplinary approach to the family with HD comprises a variety of specialized services, such as neurology, psychiatry, neuropsychology, clinical genetics, physiotherapy, speech and language therapy, dietician, and dentistry. Social services are an integral part of the management of an HD family.

Aims To share experiences from a social services perspective from a German HD clinic.

Material and methods Summary of experiences from case management.

Results/outcome HD patients require a lot of support from social services. They need advice on their welfare rights, insurances, and benefit from help with financial advisors, disability, employment advisors, peer support groups, housing support services, day-care services, personal care, occupational therapy services, and drivers’ licensing authorities.

Conclusions Social services are a key component of the care of an HD patient.

KeyWords
  • Social work
  • Casemanagment

Statistics from Altmetric.com

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.