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L17 Model for the Comprehensive and Specialised Treatment for Huntington’s Disease: Duran I Reynals Day Hospital for Neurological Diseases
  1. N Rodriguez-Dechichá1,
  2. I Vaquer1,
  3. M Castro1,
  4. JM Bermejo1,
  5. J Vicens-Vilanova1,
  6. A Dávila1,
  7. S Jaumà2,
  8. J Campdelacreu2,
  9. M Calopa2,
  10. S Subirá1
  1. 1Fundació Sociosanitària de Barcelona, Hospital Duran I Reynals
  2. 2Hospital Universitari de Bellvitge, Servei de Neurologia, Unitat de Trastorns Del Moviment

Abstract

Huntington’s disease (HD) is a neurodegenerative disease that affects different capacities and general well-being. Therefore, it requires a comprehensive and coordinated treatment.

Duran i Reynals Day Hospital (HDDR) provide Neurorehabilitation to both young people and adults with brain damage or dysfunction. HDDR has developed a specific therapeutic program aimed at people who suffer HD and their families, offering continuous attention ranging from presymptomatic to later stages of the disease.

The aim of this poster is to raise awareness of the support program offered to sufferers and their families. It describes the circuit of admission and follow-up of the case, as well as the available programs of specialised treatments (neuropsychology, genetic counselling, physiotherapy, speech therapy, social work, psychiatry).

It shows the rise in the number of cases treated since the HDDR’s programme commenced, reflecting the increase of patients and families treated. The Socio-demographic trends are presented of the patients currently being treated (23 patients). Finally, it is of importance to note the views of patients and their families regarding the benefits of this treatment.

The HDDR is a specialised facility and a reference point for HD in Catalonia and the centre of expertise in this field.

Specific resources dedicated to HD should be strengthened, ensuring a continuous and specialised treatment while patients and families are dealing with this disease.

KeyWords
  • Huntington
  • neurorehabilitation
  • therapeutic program

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