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K5 Huntington’s disease: a conceptual framework for care in nursing and residential homes
  1. Steve Smith
  1. University of East Anglia, School of Health Sciences, Faculty of Medicine and Health, University of East Anglia, UK


Background Approaches to care for people with HD need agreement between multidisciplinary team members including patient and family due to complex challenges associated with HD2. A model of long term care provision in HD proposes a key-worker liaising with the patient and family to integrate multidisciplinary input and shared goals through early mid and late HD stages, enhancing self-management principles as far as possible and increasing level of service input as appropriate, until reaching a ‘tipping point’ when residential care is necessary3.

It is proposed that the ‘tipping point’ referred to by Wilson et al (2014b) need not mark the end of the principles underpinning their approach to HD care. After admission to a nursing or residential home a model of nursing1 can aid maximising independence for people with HD.

Case history Following successive failed admissions to institutional care, a 56 year old gentleman with HD lived in a small 16-bed care home for 8 years until he died. Within 6 months problems of double incontinence and aggression towards staff were resolved.

Conclusion The staff team attributed the successful placement to three aspects of their care: Their approach to communicating; Good use of the Roper Logan and Tierney Nursing Model and Good care for staff. The poster will provide greater detail of the approach to care and the application of the Roper Logan and Tierney Model.


  1. Roper N, Logan W, Tierney A. The Roper-Logan-Tierney model of nursing: based on activities of living, Churchill Livingsone/Elsevier, Edinburgh, 2000

  2. Wilson E, Pollock K, Aubeeluck A. Providing care services to people affected by Huntington’s disease an overview of the challenges. British J Neuro Nurs 2014a;10(3):139–143

  3. Wilson E, Pollock K, Aubeeluck A. Applying a healthcare model to Huntington’s disease: the keyworker approach. British J Neuro Nurs 2014b;10(5):214–218

  • Conceptual Framework
  • Model of Nursing
  • Nursing home
  • Residential care

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