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K10 E-health support for community residing HD patients: report of a pilot-project
  1. Jesseke de Man1,
  2. Lia de Jager1,
  3. Joan Kleiterp1,
  4. David Engelhard1,
  5. Wilco Achterberg1,2
  1. 1Topaz Huntington Centre Overduin, Katwijk, The Netherlands
  2. 2Department of Public Health and Primary Care, Leiden University Medical Centre, Leiden, The Netherlands

Abstract

Background Topaz Huntington Centre Overduin is a 70 bed long term care facility with a daycare facility for 25 patients and an ambulatory support centre for 80 HD-patients. Following preferences of patients and society, we aim to arrange support in a way that patients can live at home as well and long as possible. However, physical distance between patients and professionals with HD-expertise is a barrier to achieve this goal.

Aim To develop and test blended care by using E-health technology

Methods With the help of both professional and informal caregivers a set of requirements were established. After introducing both an interactive knowledge website (www.huntingtonplein.nl) and a secure part with virtual connected care opportunities for patients and informal care givers we asked participants to fill out an evaluation form. In addition, we evaluated the use of all functions.

Results

  1. The part of Huntington Plaza that is available for everybody is visited by 400 people each month.

  2. The secure part with possibilities to connect to professional care givers is now used by 26 patients. It is mainly used by case managers, that now have in average contact with these patients once a week, instead of physical contact once every 6–8 weeks before the start of the project.

  3. The evaluation by the patients revealed that it helps them to stay longer at their own home, is effective in more contacts with the HD-experts with less travelling time. The majority recommends this to other patients. It increases continuity of care, helps to prevent escalations and crisis and in addition intensifies the quality of the contacts between patients, professional and informal care givers.

  4. Professional care givers were positive about the extended possibilities.

Conclusion This E-Health assisted program was evaluated positively by patients and informal care givers and could help to postpone institutional admission.

  • long term care
  • E-health
  • case management

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