Table 1 Independent variables and methods used for data collection, categorisation criteria and variable characteristics of the sample (n = 219)
Independent variables* and methodsCategorisation criteriaCharacteristics of the sample (n)
Age†<47 y108
⩾47 y111
SexFemale149
Male70
Sense of coherence: SOC scale‡Weak/moderate, <76148
Strong, ⩾7658
Living with a partner§: interviewYes152
No69
Living with children§: interviewYes64
No155
Work status¶: interviewWorking, full- or part-time117
Not working84
Immunomodulatory treatment: medical records and interviewOngoing treatment182
No treatment37
Mood, depressive symptoms: BDI**Symptoms, ⩾1390
No symptoms, <13108
Disease severity: EDSS††Normal, 01
Mild, 1.0–3.5129
Moderate, 4.0–5.537
Severe, 6.0–9.552
Disease courseRelapsing remitting127
Progressive‡‡92
Time since diagnosis§§: medical records and interview⩽10 y101
>10 y118
  • *Independent variables: data were collected at baseline, except SOC, which was collected at 6 or 12 months.

  • †Age: categorised according to the mean age of the sample: mean 47 (SD 12 (range 20–75)).

  • ‡SOC: the 13 item version SOC scale11 was used and categorised with reference to a sample from the Swedish general population, adjusting for gender15 (n = 206).

  • §A person was considered a partner if ⩾18 years of age and a child if <18 years of age.

  • ¶Work status: applied for PwMS <65 years of age, the customary retirement age in Sweden (n = 201).

  • **Mood: categorised as depressive symptoms if at any time during the study (at baseline, 12 or 24 months) the BDI16 score was ⩾13,17 otherwise categorised as no depressive symptoms (n = 198).

  • ††The EDSS18: categorised according to the categorisation applied in the Swedish MS Registry.19

  • ‡‡Primary progressive or secondary progressive course.

  • §§Time since diagnosis: mean 14 (SD 10 (range 0–44)).

  • BDI, Beck Depression Inventory; EDSS, Expanded Disability Status Scale; PwMS, persons with multiple sclerosis; SOC, sense of coherence.