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The ideal QoL measure in MND needs to fulfil a range of requirements
The optimal approach to the evaluation of quality of life (QoL) in people with motor neurone disease (MND)/amyotrophic lateral sclerosis (ALS) is still unclear. The paper by Jenkinson and others (JNNP February issue, 242–245) is an important contribution to this debate.1
The ideal QoL measure in MND needs to fulfil a range of requirements. It must not be an unacceptable burden on sufferers and carers. MND patients tire easily; if the tool is too long, fatigue will ensue and the responses will become increasingly unreliable. The nature of the questions may also colour the responses obtained. The Sickness …
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