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Development and validation of a short version of the Stroke Specific Quality of Life Scale
  1. Marcel W M Post1,
  2. Hileen Boosman1,
  3. Martine M van Zandvoort2,3,
  4. Patricia E C A Passier1,
  5. Gabriel J E Rinkel2,
  6. Johanna M A Visser-Meily1
  1. 1Rudolf Magnus Institute for Neuroscience and Centre of Excellence in Rehabilitation Medicine, University Medical Centre Utrecht and De Hoogstraat, Utrecht, The Netherlands
  2. 2Rudolf Magnus Institute for Neuroscience, Department of Neurology, University Medical Centre, Utrecht, The Netherlands
  3. 3Experimental Psychology, Helmholtz Institute, Utrecht University, The Netherlands
  1. Correspondence to Dr M W M Post, Rehabilitation Centre De Hoogstraat, Rembrandtkade 10, 3583 TM Utrecht, The Netherlands;{at}


Background and purpose The Stroke Specific Quality of Life Scale (SS-QoL) is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. A short version of the SS-QoL was developed and tested here.

Methods Secondary analyses of three different studies. The short version was developed using data from 141 patients with aneurysmal subarachnoid haemorrhage (SAH) and tested on data from independent samples of 97 patients with SAH and 105 patients with ischaemic stroke or intracerebral haemorrhage. The item with the highest item domain correlation from each of the SS-QoL domains was selected to obtain a 12 item SS-QoL (SS-QoL-12) with a total score and physical and psychosocial subscores. Criterion validity of the SS-QoL-12 scores was tested in each sample with the original SS-QoL as reference.

Results All three scores of the SS-QoL-12 showed good internal consistency (Cronbach's alpha 0.77–0.89). The SS-Qol-12 scores predicted 88–95% of the variance of the original SS-QoL. Mean differences between the SS-QoL-12 and SS-QoL and their 95% CI were generally within 0.1 points on a 1–5 scale. The limits of agreement were generally within 0.4 points.

Conclusion The SS-QoL-12 has good criterion validity for all subsets of stroke. Because it consists of only 12 questions, this short form will be easy to use in research and clinical settings.


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  • Competing interests None.

  • Ethics approval This study was conducted with the approval of the medical ethics committee of the University Medical Centre Utrecht.

  • Provenance and peer review Not commissioned; externally peer reviewed.