Aims A specialist service is required to meet the complex needs of HD patients and ensure that they are not deprived from essential care on grounds of physical or psychiatric disabilities.
Methods Our clinic team include: Consultant Neuropsychiatrist, OT, SALT, Palliative Care Nurse, Psychologist & a HDA representative. Suitable refreshments; promoting appropriate eating & drinking habits are available. After the clinic, the team meet up to agree a care plan.
Results The clinic is regarded by users as a convenient forum that holistically addresses clinical issues. The time spent in the clinic gives clinicians more insight into family dynamics. Communication between clinicians has improved as they are able to discuss their findings face to face. The clinic a valued training forum. However, the clinic can be rather tiring. Pairing up of staff or getting some patients to only see professionals that are most relevant to them, is considered. An advance introduction to the clinic also helps.
Conclusions The team have aspirations to further develop quantifiable outcomes to scientifically demonstrate the clinical & cost effective value of the service and be more able to communicate this to stakeholders.
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