A14 Health care delivery in Enroll-HD and ehdn’s registry sites: an international survey

Jan C Frich; Daniela Rae; Richard Roxburgh; Zofia H Miedzybrodzka; Mary Edmondson; Erika Bjorklund Pope; LaVonne Goodman; Monica S Haddad; Joe Giuliano; Eugene C Nelson; Mark Guttman; Martha Nance

doi:10.1136/jnnp-2016-314597.14

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A14 Health care delivery in Enroll-HD and ehdn’s registry sites: an international survey

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Jan C Frich 1Department of Neurology, Oslo University Hospital, Oslo, Norway 2Institute of Health and Society, University of Oslo, Oslo, Norway PubMed articles Google scholar articles
Daniela Rae 3Department of Clinical Genetics, NHS Grampian, Aberdeen, UK 4Health Services Research Unit, University of Aberdeen, Aberdeen, UK PubMed articles Google scholar articles
Richard Roxburgh 5Auckland City Hospital, Auckland, New Zealand PubMed articles Google scholar articles
Zofia H Miedzybrodzka 3Department of Clinical Genetics, NHS Grampian, Aberdeen, UK PubMed articles Google scholar articles
Mary Edmondson 6HD Reach, Raleigh, NC, USA PubMed articles Google scholar articles
Erika Bjorklund Pope 7Pacific Northwest University of Health Sciences, Yakima, WA, USA PubMed articles Google scholar articles
LaVonne Goodman 8Huntington’s Disease Drug Works, Lake Forest Park, WA, USA PubMed articles Google scholar articles
Monica S Haddad 9Department of Neurology, School of Medicine, University of São Paulo, São Paulo, SP, Brazil PubMed articles Google scholar articles
Joe Giuliano 10CHDI Management/CHDI Foundation, Princeton, NJ, USA PubMed articles Google scholar articles
Eugene C Nelson 11The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, NH, USA PubMed articles Google scholar articles
Mark Guttman 12Centre for Movement Disorders, Toronto, Ontario, Canada PubMed articles Google scholar articles
Martha Nance 13Struthers Parkinson’s Centre, Golden Valley, MN, USA PubMed articles Google scholar articles

Citation

Frich JC, Rae D, Roxburgh R, et al

A14 Health care delivery in Enroll-HD and ehdn’s registry sites: an international survey

Journal of Neurology, Neurosurgery & Psychiatry 2016;87:A4.

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First published September 13, 2016.

Online issue publication

September 13, 2016

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