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K23 Huntington’s disease clinical tips for occupational therapists
  1. Kirsty Page1,
  2. Louise Oakley2,
  3. Poppy Hill3,
  4. Alex Fisher4,
  5. Zhanna Carter5,
  6. Suzi Kerrell-Vaughan1
  1. 1Badby Park Ltd,Badby Road West, Badby, Daventry, Northamptonshire, UK
  2. 2The Barberry Centre, Edgbaston, Birmingham, UK
  3. 3Huntington’s Disease Association, Liverpool Science Park, Innovation Centre 1, Liverpool, UK
  4. 4Heathfield Neuro Disability Service, Tottingworth Park, Broad Oak, Heathfield, East Sussex, UK
  5. 5Bevan House, The Barony, Nantwich, Cheshire, UK


Background Stand-alone clinical tips for occupational therapists working with Huntington’s disease have been written. These consist of 8 specific domains: 1. Eating and drinking, 2. Self-care, 3. Domestic skills, 4. Community living skills and outdoor mobility, 5. Social and leisure 6. Work, 7. Sleep routine and management, 8. End stage and palliative care. These provide best practice guidance on the clinical management of HD for practitioners to make decisions regarding best patient care.

These have been produced by a UK HD special interest group for occupational therapists based on the ‘Occupational Therapy for people with Huntington’s disease: Best Practice Guidelines’. Contributions have been made by occupational therapists with expertise and knowledge gained through working with people with HD and their families.

Conclusions HD clinical tips for occupational therapists are a useful resource for any occupational therapist who, during their career, may come across a person or family with HD. The tips include why a person may have problems in specific activities due to this condition and clinical suggestions for assessment, intervention and advice for working with people with HD and their families.

  • Occupational Therapy
  • Clinical tips
  • Management of HD

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