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H43 Providing and measuring the value of activity for people with huntington’s disease in care
  1. Kirsty Page
  1. Elysium Neurological Services, Badby Park, Daventry, Northants, UK


Providing meaningful activity and promoting quality of life with individuals with advanced Huntington’s disease can be challenging for care providers. Obtaining information from families about a person’s past interests is invaluable in providing purposeful activity; however this information is not always available. This poster demonstrates how tools have been used and developed to obtain good case histories of individuals. It shares how The Pool Activity Level (PAL) Instrument for Occupational Profiling has helped in activity planning and how The Bradford well-being profile tool has been adapted to record participation in activity to give qualitative date on well-being during an activity. This information has enabled teams to plan and offer activities that are meaningful and appropriate for an individual taking into account their preferences and ability to engage in an activity.

  • Activity
  • quality of life
  • assessment tools.

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