Article Text
Abstract
Introduction This audit (presented ABN2021), identified multiple problems highlighting that the UK MS community should maximise influence, efficiency and data usage. Here, we address how.
Aim To present practical steps taken to improve UK MS care.
Methods Audit results were discussed with key stakeholders. Potential projects were proposed, discussed and refined. A set of deliverable projects actionable by the UK MS community was identified.
Funding models that maximise investments were considered. Results
The projects, for which funding has been sought, are:
• Clarifying roles and responsibilities of MS team members
• Website, to facilitate communication and good practice repository
• Where’s the care? – UK MS care map development
• Recording care – MS team documentation
• Measuring outcomes – MS expectation frameworks (for Patients and teams)
• Maximising core activities – making blueteq (and prescribing databases) indispensable
• Advancing data value – improving Hospital Episode Statitics
• (HES data) For delivery, quality and routine use
• Ensuring the future – making MS an attractive career option
For delivery, a ring-fenced entity (Transforming MS 4 All) was established within an existing not-for-profit community interest company (CiC).
Conclusions These deliverable, impactful projects should improve UK MS care. Managing finances under a CiC enables transparency, accountability and reinvestment of funding, to sustain services. Neverthe- less, much more is needed.