Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis

Peter White; Susan Abbey; Brian Angus; Harriet A Ball; Dedra S Buchwald; Christine Burness; Alan J Carson; Trudie Chalder; Daniel J Clauw; Jan Coebergh; Anthony S David; Barbara A Dworetzky; Mark J Edwards; Alberto J Espay; John Etherington; Per Fink; Signe Flottorp; Béatrice Garcin; Paul Garner; Paul Glasziou; Willie Hamilton; Peter Henningsen; Ingrid Hoeritzauer; Mujtaba Husain; Anne-Catherine M L Huys; Hans Knoop; Kurt Kroenke; Alexander Lehn; James L Levenson; Paul Little; Andrew Lloyd; Ira Madan; Jos W M van der Meer; Alastair Miller; Maurice Murphy; Irwin Nazareth; David L Perez; Wendy Phillips; Markus Reuber; Winfried Rief; Alastair Santhouse; Tereza Serranova; Michael Sharpe; Biba Stanton; Donna E Stewart; Jon Stone; Michele Tinazzi; Derick T Wade; Simon C Wessely; Vegard Wyller; Adam Zeman

doi:10.1136/jnnp-2022-330463

Article info

Neuropsychiatry

Review

Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis

Authors

Peter White Wolfson Institute for Population Health, Queen Mary University Barts and The London School of Medicine and Dentistry, London, UK PubMed articles Google scholar articles
Susan Abbey Toronto General Hospital Research Institute, University of Toronto, Toronto, Ontario, Canada PubMed articles Google scholar articles
Brian Angus Nuffield Department of Medicine, Oxford University, Oxford, UK PubMed articles Google scholar articles
Harriet A Ball Bristol Medical School, University of Bristol Faculty of Health Sciences, Bristol, UK PubMed articles Google scholar articles
Dedra S Buchwald Institute for Research and Education to Advance Community Health, Washington State University, Seattle, Washington, USA PubMed articles Google scholar articles
Christine Burness The Walton Centre NHS Foundation Trust, Liverpool, UK PubMed articles Google scholar articles
Alan J Carson Centre for Clinical Brain Sciences, Royal Infirmary, Edinburgh, UK PubMed articles Google scholar articles
Trudie Chalder Department of Psychological Medicine, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK PubMed articles Google scholar articles
Daniel J Clauw Departments of Anesthesiology, Medicine and Psychiatry, University of Michigan, Ann Arbor, Michigan, USA PubMed articles Google scholar articles
Jan Coebergh Ashford St Peter’s NHS Foundation Trust, Chertsey, St George’s University Hospitals, London, UK PubMed articles Google scholar articles
Anthony S David Institute of Mental Health, University College London, London, UK PubMed articles Google scholar articles
Barbara A Dworetzky Department of Neurology, Harvard Medical School, Brigham and Women’s Hospital, Boston, Massachusetts, USA PubMed articles Google scholar articles
Mark J Edwards Neuroscience Research Centre, St George’s University, London, UK PubMed articles Google scholar articles
Alberto J Espay James J. and Joan A. Gardner Family Center for Parkinson’s disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA PubMed articles Google scholar articles
John Etherington Pure Sports Medicine, London, UK PubMed articles Google scholar articles
Per Fink Research Clinic for Functional Disorders, Aarhus University, Aarhus, Denmark PubMed articles Google scholar articles
Signe Flottorp Centre for Epidemic Interventions Research, Division for Health Services, Norwegian Institute of Public Health, Oslo, Norway PubMed articles Google scholar articles
Béatrice Garcin Hopital Avicenne, Universite Sorbonne Paris Nord - Campus de Bobigny, Bobigny, France PubMed articles Google scholar articles
Paul Garner Centre for Evidence Synthesis in Global Health, Liverpool School of Tropical Medicine, Liverpool, UK PubMed articles Google scholar articles
Paul Glasziou Institute for Evidence-Based Healthcare, Faculty of Health Sciences & Medicine, Bond University, Robina, Queensland, Australia PubMed articles Google scholar articles
Willie Hamilton Institute of Health Research, University of Exeter, Exeter, UK PubMed articles Google scholar articles
Peter Henningsen Psychosomatic Medicine, University Hospital, Technical University Munich, Munich, Germany PubMed articles Google scholar articles
Ingrid Hoeritzauer Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK PubMed articles Google scholar articles
Mujtaba Husain Persistent Physical Symptom Service, South London and Maudsley NHS Foundation Trust, London, UK PubMed articles Google scholar articles
Anne-Catherine M L Huys Department of Neurology, Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK PubMed articles Google scholar articles
Hans Knoop Department of Medical Psychology, University of Amsterdam, Amsterdam, Netherlands PubMed articles Google scholar articles
Kurt Kroenke Regenstrief Institute, Indiana University School of Medicine, Indianapolis, Indiana, USA PubMed articles Google scholar articles
Alexander Lehn Brisbane Clinical Neuroscience Centre, The University of Queensland, Brisbane, Queensland, Australia PubMed articles Google scholar articles
James L Levenson Department of Psychiatry, Virginia Commonwealth University, Richmond, Virginia, USA PubMed articles Google scholar articles
Paul Little Primary Care Research Centre, Primary Care Population Sciences and Medical Education Unit, Faculty of Medicine, University of Southampton, Southampton, UK PubMed articles Google scholar articles
Andrew Lloyd Kirby Institute, University of New South Wales, Sydney, New South Wales, Australia PubMed articles Google scholar articles
Ira Madan Faculty of Occupational Medicine, Guy’s and St Thomas’ NHS Foundation Trust, London, UK PubMed articles Google scholar articles
Jos W M van der Meer Department of Internal Medicine, Radboud University Medical College, Nijmegen, Netherlands PubMed articles Google scholar articles
Alastair Miller Department of Medicine, Cumberland Infirmary Carlisle, Carlisle, UK PubMed articles Google scholar articles
Maurice Murphy Department of Infection and Immunity, Barts Health NHS Trust, London, UK PubMed articles Google scholar articles
Irwin Nazareth Primary Care & Population Science, University College London, London, UK PubMed articles Google scholar articles
David L Perez Neurology and Psychiatry, Massachusetts General Hospital, Charlestown, Massachusetts, USA PubMed articles Google scholar articles
Wendy Phillips Department of Neurology, Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK PubMed articles Google scholar articles
Markus Reuber Department of Neuroscience, The Medical School, University of Sheffield, Sheffield, UK PubMed articles Google scholar articles
Winfried Rief Division of Clinical Psychology and Psychotherapy Clinic, University of Marburg, Marburg, Germany PubMed articles Google scholar articles
Alastair Santhouse Persistent Physical Symptom Service, South London and Maudsley NHS Foundation Trust, London, UK PubMed articles Google scholar articles
Tereza Serranova Dept. of Neurology and Center of Clinical Neuroscience, Charles University in Prague, Prague, Czech Republic PubMed articles Google scholar articles
Michael Sharpe Psychological Medicine Research, University of Oxford, Oxford, UK PubMed articles Google scholar articles
Biba Stanton Department of Neurology, King's College Hospital, London, UK PubMed articles Google scholar articles
Donna E Stewart Centre for Mental Health, University of Toronto, University Health Network, Toronto, Ontario, Canada PubMed articles Google scholar articles
Jon Stone Centre for Clinical Brain Sciences, Royal Infirmary, University of Edinburgh, Edinburgh, UK PubMed articles Google scholar articles
Michele Tinazzi Department of Neurosciences, Biomedicine and Movement, University of Verona, Verona, Italy PubMed articles Google scholar articles
Derick T Wade Centre for Movement, Occupational and Rehabilitation Sciences, Oxford Brookes University, Oxford, UK PubMed articles Google scholar articles
Simon C Wessely Psychological Medicine, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK PubMed articles Google scholar articles
Vegard Wyller Division of Medicine and Laboratory Sciences, Institute of Clinical Medicine, University of Oslo, Oslo, Norway PubMed articles Google scholar articles
Adam Zeman Cognitve Neurology Research Group, University of Exeter Medical School, Exeter, UK PubMed articles Google scholar articles

Correspondence to Trudie Chalder, Department of Psychological Medicine, King's College London Institute of Psychiatry Psychology and Neuroscience, London, London, UK; trudie.chalder{at}kcl.ac.uk

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Citation

White P, Abbey S, Angus B, et al

Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis

Journal of Neurology, Neurosurgery & Psychiatry 2023;94:1056-1063.

Publication history

Received September 25, 2022
Accepted May 3, 2023
First published July 10, 2023.

Online issue publication

November 15, 2023

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