Table 1

Long term follow up after selective denervation for torticollis

Patient No	Age at onset	Duration of follow up (months)	Primary directions of torticollis	Pain	Resistance to botulinum toxin	Baseline ADL capacity and effect of surgery on ADLs	Occupational status before first operation
1	36	84	Rotation	Y	Secondary	Impaired for ADLs; no benefit	At home
2	54	89	Rotation	Y	Secondary	Impaired for ADLs; improved	At home
3	53	70	Rotation	Y	Primary	Disabled for ADLs; no benefit	Disabled
4	39	70	Rotation	Y	Secondary	Impaired for ADLs; improved with moderate residual disability	At home
5	54	20	Retrocollis	N	Primary	Impaired for ADLs; no benefit	Disabled
6	28	46	Retrocollis	Y	Secondary	Impaired for ADLs; no benefit	Disabled
7	54	63	Rotation	Y	—	Impaired for ADLs; improved with mild residual disability	Disabled
8	49	48	Rotation	Y	Secondary	Impaired for ADLs; improved with mild residual disability	At home
9	36	111	Rotation and laterocollis	N	Secondary	Impaired for ADLs; improved to normal	Working full time
10	54	89	Laterocollis	Y	Secondary	Impaired for ADLs; no benefit	Working full time
11	41	76	Rotation	Y	Secondary	Disabled for ADLs; improved with mild residual disability	Disabled
12	44	14	Rotation and laterocollis	Y	Secondary	Impaired for ADLs; improved with moderate residual disability	Working full time
13	47	27	Rotation	Y	—	Impaired for ADLs; improved with moderate residual disability	Disabled
14	50	75	Rotation	Y	Secondary	Impaired for ADLs; improved with mild residual disability	At home
15	44	53	Laterocollis	Y	Primary	Impaired for ADLs; improved with moderate residual disability	Disabled
16	50	17	Laterocollis	Y	Secondary	Impaired for ADLs; improved with moderate residual disability	Disabled


Most recent occupational status	Medications at follow up	Long term effect on pain	Need for more surgery	Final overall status¹
At home	Same	No benefit	—	0
At home	Same	Unknown	—	1
Still disabled	Same	No benefit	Revision (1), thalamotomy	0
At home	Reduced	Improvement; residual pain	—	1
Still disabled	Increased	—	—	0
Still disabled	Same	No benefit	Revisions (2)	0
Retired	Reduced	Improvement; residual pain	Revision (1)	2
At home	Same; still receives botulinum toxin injections	Improvement; residual pain	—	2

Working full time	Reduced	—	Revision (1)	3
Disabled	Same	No benefit	—	0
Still disabled	Reduced	Improvement; mild residual pain	Revision (1)	2

Disabled	Off meds	Complete relief	—	2
Still disabled	Off meds	Improvement; residual pain	—	1
At home	Reduced	Improvement; residual pain	Revision (1)	2
Still disabled	Off meds	Improvement; residual pain	—	1
Still disabled	—	No benefit	—	1

1-150 Overall rating of dystonia severity based on disability:
0=No improvement in dystonia, or worse dystonia.
1=Mild improvement in dystonia, with moderate residual disability.
2=Moderate improvement in dystonia, enabling patient to function with only minor limitation or discomfort.
3=Complete or almost complete resolution of torticollis and return of normal function.
ADLs=activities of daily living.