Table 1

Content of HqoL scales

Items	PDQ39	PDQL	PIMS	PLQ
Numbers in columns correspond with the number of the item in the scale; numbers in parentheses indicate that the item is assessed, but is primarily allocated to another section.
*”leisure activities” and “looking after home” are present in both physical and social domain because of differences in subscale allocation among scales;
†item numbers of the PIMS are sometimes presented more than once because of broad formulation.
Physical:
Walking
Problems getting around house	6
Walking	4, 5	24		25
Shuffling; initiation/shuffling		11		7
Transfer:
Turning in bed		35
Getting up		32
Turning around while walking		14
Self care:
Self care				23
Washing	11
Dressing	12
Cutting food	15
Holding drinks without spilling	16
Doing up buttons/shoe laces	13
Daily activities:
Looking after home*	2		(5)	40
Carrying bags/shopping	3
Doing leisure activities*	1	(8)	7	(38)
Getting around in public	7
Transportation:
Take part in traffic		29	6	21
Needed company when going out	8
Motor feature:
Mobility				27
Slowness				1
Rigidity		1		3
Dexterity		9		26
Shaking hands; tremor		6		4
Sudden uncontrolled movements		30		2
On off periods		20		14
Speech; talking	34	22
Writing	14	16
Other disease features:
Generally unwell		2
Extreme exhaustion		13
Worn out		7		20
Painful cramps or spasms	37
Pain in joints or body	38			6
Unexpected falling asleep	30
Problems sleeping (at night)		19		5
Difficulty sitting still		27
Drooling		25
Incontinence/frequent urinating		28
Constipation		33
Feeling unpleasantly hot or cold	39
Feeling that body parts don't belong to oneself				44

Mental:
Cognition
Concentration	31	31		8
Adjusting to circumstances				32
Memory	32	34		28
Mood
Depression	17	26	2†	11, 30
Weepy or tearful	19
Feelings (positive)
Feelings; confidence			1	41
Self worth			1	29
Feelings (negative)
Being tense; stress		4	2	10
Angry or bitter	20
Unsure due physical limitations; trust body functions		5		34
Safety; doing what you want without harming yourself			8
Unsure around others		18
Feeling isolated/lonely	18
Feeling ignored	36
Anxious/worry
Anxious	21		2
Worry loss cognitive capacity				18
Worry physical loss				19
Worry illness				42
Worry future; afraid progression	22	15		13, 16, 43
Worry operation		37
Fear side effects				17
Worry falling	9
Other features
Dependency on medication				15
Difficulty accepting illness		21
Confined to house more than liked	10
Distressing dreams/hallucinations	33			9
Disinterest/listnessless				12

Social and role functioning:
Relationships
Problems with close relationships	27		3
Lacked support spouse/partner	28		3
Lacked support family/friends	29
Impact community relationships			4
Sexual relationship		36	10
Wanted to isolate oneself				35
Keeping up relationships				24
Social stigma (fear of)
Embarrassed (in public)	25	10
Worried about other's reaction	26
Felt had to conceal PD	23
Feeling that illness is noticed				36
Avoid eating/drinking in public	24
Signing name in public		23
Role functioning
Work			5
Looking after home*	(2)		5
Financial security/support			9
Feeling dependent of others				31
Social activities:
Doing hobbies		3		39
Doing leisure activities*	(1)	8	(7)	38
Cancel social activities		12
Cancel important activities				33
Less able to go on holiday		17		37
Visit exhibitions				22
Problems with communication	35