Content of HqoL scales
Items | PDQ39 | PDQL | PIMS | PLQ |
---|---|---|---|---|
Numbers in columns correspond with the number of the item in the scale; numbers in parentheses indicate that the item is assessed, but is primarily allocated to another section. | ||||
*”leisure activities” and “looking after home” are present in both physical and social domain because of differences in subscale allocation among scales; | ||||
†item numbers of the PIMS are sometimes presented more than once because of broad formulation. | ||||
Physical: | ||||
Walking | ||||
Problems getting around house | 6 | |||
Walking | 4, 5 | 24 | 25 | |
Shuffling; initiation/shuffling | 11 | 7 | ||
Transfer: | ||||
Turning in bed | 35 | |||
Getting up | 32 | |||
Turning around while walking | 14 | |||
Self care: | ||||
Self care | 23 | |||
Washing | 11 | |||
Dressing | 12 | |||
Cutting food | 15 | |||
Holding drinks without spilling | 16 | |||
Doing up buttons/shoe laces | 13 | |||
Daily activities: | ||||
Looking after home* | 2 | (5) | 40 | |
Carrying bags/shopping | 3 | |||
Doing leisure activities* | 1 | (8) | 7 | (38) |
Getting around in public | 7 | |||
Transportation: | ||||
Take part in traffic | 29 | 6 | 21 | |
Needed company when going out | 8 | |||
Motor feature: | ||||
Mobility | 27 | |||
Slowness | 1 | |||
Rigidity | 1 | 3 | ||
Dexterity | 9 | 26 | ||
Shaking hands; tremor | 6 | 4 | ||
Sudden uncontrolled movements | 30 | 2 | ||
On off periods | 20 | 14 | ||
Speech; talking | 34 | 22 | ||
Writing | 14 | 16 | ||
Other disease features: | ||||
Generally unwell | 2 | |||
Extreme exhaustion | 13 | |||
Worn out | 7 | 20 | ||
Painful cramps or spasms | 37 | |||
Pain in joints or body | 38 | 6 | ||
Unexpected falling asleep | 30 | |||
Problems sleeping (at night) | 19 | 5 | ||
Difficulty sitting still | 27 | |||
Drooling | 25 | |||
Incontinence/frequent urinating | 28 | |||
Constipation | 33 | |||
Feeling unpleasantly hot or cold | 39 | |||
Feeling that body parts don't belong to oneself | 44 | |||
Mental: | ||||
Cognition | ||||
Concentration | 31 | 31 | 8 | |
Adjusting to circumstances | 32 | |||
Memory | 32 | 34 | 28 | |
Mood | ||||
Depression | 17 | 26 | 2† | 11, 30 |
Weepy or tearful | 19 | |||
Feelings (positive) | ||||
Feelings; confidence | 1 | 41 | ||
Self worth | 1 | 29 | ||
Feelings (negative) | ||||
Being tense; stress | 4 | 2 | 10 | |
Angry or bitter | 20 | |||
Unsure due physical limitations; trust body functions | 5 | 34 | ||
Safety; doing what you want without harming yourself | 8 | |||
Unsure around others | 18 | |||
Feeling isolated/lonely | 18 | |||
Feeling ignored | 36 | |||
Anxious/worry | ||||
Anxious | 21 | 2 | ||
Worry loss cognitive capacity | 18 | |||
Worry physical loss | 19 | |||
Worry illness | 42 | |||
Worry future; afraid progression | 22 | 15 | 13, 16, 43 | |
Worry operation | 37 | |||
Fear side effects | 17 | |||
Worry falling | 9 | |||
Other features | ||||
Dependency on medication | 15 | |||
Difficulty accepting illness | 21 | |||
Confined to house more than liked | 10 | |||
Distressing dreams/hallucinations | 33 | 9 | ||
Disinterest/listnessless | 12 | |||
Social and role functioning: | ||||
Relationships | ||||
Problems with close relationships | 27 | 3 | ||
Lacked support spouse/partner | 28 | 3 | ||
Lacked support family/friends | 29 | |||
Impact community relationships | 4 | |||
Sexual relationship | 36 | 10 | ||
Wanted to isolate oneself | 35 | |||
Keeping up relationships | 24 | |||
Social stigma (fear of) | ||||
Embarrassed (in public) | 25 | 10 | ||
Worried about other's reaction | 26 | |||
Felt had to conceal PD | 23 | |||
Feeling that illness is noticed | 36 | |||
Avoid eating/drinking in public | 24 | |||
Signing name in public | 23 | |||
Role functioning | ||||
Work | 5 | |||
Looking after home* | (2) | 5 | ||
Financial security/support | 9 | |||
Feeling dependent of others | 31 | |||
Social activities: | ||||
Doing hobbies | 3 | 39 | ||
Doing leisure activities* | (1) | 8 | (7) | 38 |
Cancel social activities | 12 | |||
Cancel important activities | 33 | |||
Less able to go on holiday | 17 | 37 | ||
Visit exhibitions | 22 | |||
Problems with communication | 35 |