Age when surveyed (years) | 51 (12)* (19–79)† |
Women/men | 118/48 (71/29) |
Living with a partner | 102 (61) |
Type of housing/sheltered accommodation | 11 (7) |
University level education | 66 (40) |
Working | 68 (41) |
Swedish origin | 151 (91) |
Age at disease onset (years) | 31 (10)* (11–58)† |
Disease duration (years) | 19 (11)* (1–55)† |
Disease severity (EDSS) | |
Mild (0–3) | 42 (25) |
Moderate (3.5–5.5) | 35 (21) |
Severe (6–6.5) | 47 (28) |
Very severe (>7) | 42 (25) |
Disease course | |
Relapsing/remitting | 70 (42) |
Secondary progressive | 80 (48) |
Primary progressive | 16 (10) |
Ongoing pharmacological treatment when surveyed | |
Disease modifying | 68 (41) |
Symptomatic treatment | 129 (78) |
Antidepressants | 18 (11) |
Weak sense of coherence‡ | 15 (10) |