Focus-group participants
| Professionals (n=16) | Patients and carers (n=25) | ||
| Sex | Male (8) | Sex | Male (8) |
| Role | Adult neurology consultant (4) | Role | Patients (19) |
| Paediatric neurology consultant (2) | Carers (6) | ||
| Learning disability consultant (1) | |||
| Neurology registrar (3) | Mean age | Patients (46.6 years) | |
| General practitioner (1) | Carers (50.8 years) | ||
| Epilepsy nurse specialist (4) | Age range | Patients (23–69 years) | |
| Genetic counsellor (1) | Carers (34–69 years) | ||
| Dietician (1) | |||