Descriptive statistics for demographic and baseline characteristics of participants
| FACETS (n=84) | CLP (n=80) | |
|---|---|---|
| Gender (n (%)) | ||
| Female | 61 (73%) | 58 (73%) |
| Male | 23 (27%) | 22 (28%) |
| Age (years) | ||
| Mean (SD) | 48.0 (10.2) | 50.1 (9.1) |
| Range | 23–73 | 28–70 |
| Ethnicity (n (%)) | ||
| White English | 68 (85%) | 69 (92%) |
| White British | 7 (9%) | 5 (7%) |
| Other | 5 (6%) | 1 (1%) |
| Not stated | 4 | 5 |
| Self-reported disease type (n (%)) | ||
| Benign | 4 (5%) | 2 (3%) |
| Relapsing-remitting | 35 (43%) | 40 (51%) |
| Secondary progressive | 16 (20%) | 23 (29%) |
| Primary progressive | 5 (6%) | 8 (10%) |
| ‘Don't know’ | 21 (26%) | 5 (6%) |
| Not stated | 3 | 2 |
| APDDS score (Adapted Patient Determined Disease Steps) (n (%)) | ||
| 3 or less (no limitations on walking) | 18 (22%) | 15 (19%) |
| 4 or 5 (MS interferes with walking) | 37 (46%) | 42 (54%) |
| 6 or more (At min., needs stick/crutch to walk 100 m) | 26 (32%) | 21 (27%) |
| Not stated | 3 | 2 |
| Level of education (n (%)) | ||
| Highest qualification achieved | ||
| No qualifications | 8 (10%) | 8 (10%) |
| One or more GCSE (or equivalent) | 36 (46%) | 29 (38%) |
| One or more A level (or equivalent) | 10 (13%) | 12 (16%) |
| First degree (or equivalent) | 16 (20%) | 19 (25%) |
| Higher degree/professional qualification | 9 (11%) | 8 (11%) |
| Not stated | 5 | 4 |
| Employment status (n (%)) | ||
| In full-time employment (>30 h per week) | 15 (18%) | 11 (14%) |
| In part-time employment (≤30 h per week) | 11 (14%) | 13 (17%) |
| Self-employed | 4 (5%) | 4 (5%) |
| Not in paid employment (unemployed, in education, retired, looking after home) | 51 (63%) | 50 (64%) |
| Not stated | 3 | 2 |
| Marital status (n (%)) | ||
| Married/cohabiting | 63 (78%) | 54 (71%) |
| Single | 5 (6%) | 7 (9%) |
| Separated/divorced | 9 (11%) | 14 (18%) |
| Widowed | 4 (5%) | 1 (1%) |
| Not stated | 3 | 4 |
| Years since diagnosis (n (%)) | ||
| <1 year | 2 (3%) | 4 (5%) |
| 1–5 years | 32 (40%) | 21 (27%) |
| 6–10 years | 13 (16%) | 19 (24%) |
| 11–15 years | 21 (26%) | 12 (15%) |
| ≥16 years | 12 (15%) | 22 (28%) |
| Not stated | 4 | 2 |
Percentages rounded to nearest integer and, thus, might not sum exactly to 100%.
CLP, current local practice; FACETS, Fatigue: Applying Cognitive behavioural and Energy effectiveness Techniques to lifeStyle; GCSE, General Certificate of Secondary Education; MS, multiple sclerosis.