Table 1

Demographic and clinical characteristics of the patients (n=485)

Characteristic
Age (years) (mean±SD)61.4±11.5
Men/women (n)249/236
Time from symptom onset (months) (mean±SD)28.4±25
Site of onset (n (%))
 Limb362 (74.6)
 Bulbar118 (24.3)
 Respiratory5 (1.1)
ALSFRS-R (mean±SD)26.5±10.3
Forced vital capacity (% predicted) (mean±SD)73.6±27.3
Percutaneous endoscopic gastrostomy (n (%))69 (14.2)
Non-invasive ventilation (n (%))148 (30.5)
Tracheostomy (n (%))9 (1.8)
  • ALSFRS-R, Amyotrophic Lateral Sclerosis Functional Rating Scale-revised.