Questions formulated by the ABN IIH SIG on the diagnosis and management of IIH
| Question number | |
| Diagnostic principles | |
| 1 | How should papilloedema be investigated? |
| Management principles Principle one: treat the underlying disease | |
| 2 | What is the best way to modify the underlying disease to induce remission? |
| Principle two: protect the vision | |
| 3 | How should IIH be treated when there is imminent risk of visual loss? |
| 4 | What is currently the best surgical procedure for visual loss in IIH? |
| 5 | What other surgical procedures are performed for visual loss in IIH? |
| 6 | What is the current role of neurovascular stenting in acute IIH to prevent loss of vision? |
| 7 | What is the role of serial lumbar punctures in IIH? |
| 8 | What is the best drug treatment for IIH symptoms? |
| 9 | How should acetazolamide be prescribed? |
| 10 | Are there other drugs that are helpful in IIH? |
| Principle three: manage the headache | |
| 11 | What is the best way to manage headaches in newly diagnosed IIH? (figure 4) |
| 12 | What is the best approach to long-term headache management in IIH? |
| 13 | What therapeutic strategies are useful for headache in IIH? |
| 14 | How should medication overuse headache be approached? |
| 15 | Should CSF diversion surgery be used in patients with IIH with headache alone? |
| 16 | Should neurovascular stenting be used in patients with IIH with headache alone? |
| 17 | How should an acute exacerbation of headache be investigated in those who are already shunted? |
| 18 | How should an acute exacerbation of headache be treated in those who are already shunted? |
| Clinical care and managing IIH in pregnancy | |
| 19 | Are there any other chronic problems that need to be addressed in IIH? |
| 20 | What advice should be given regarding drug treatments in the pregnant patient with IIH? |
| 21 | What additional considerations for management are there in the pregnant patient with IIH? |
| IIHWOP | |
| 22 | How should IIHWOP be managed? |
| Follow-up and monitoring of IIH | |
| 23 | How should we follow-up and monitor these patients? |
ABN, Association of British Neurologists; CSF, cerebrospinal fluid; IIH, idiopathic intracranial hypertension; IIHWOP, IIH without papilloedema; SIG, specialist interest group.