Name | Website | Description |
International RBD Study Group | IRBDSG.com | Organisation of RBD researchers representing registries of patients with RBD across the world. |
North American Prodromal Synucleinopathy Consortium (NAPS Consortium) | naps-rbd.org | Research participant registry at 10 sites in the USA and Canada, with the goal of forming a trial-ready cohort for disease-modifying clinical trials in RBD. |
Parkinson’s Progression Markers Initiative (PPMI) | ppmi-info.org | PD biomarkers study which previously enrolled participants with iRBD; currently closed to enrolment. Next phase (PPMI2) to start in 2020. |
ClinicalTrials.gov | clinicaltrials.gov | Database of privately and publicly funded clinical studies conducted around the world, a resource provided by the US National Library of Medicine. |
Fox Trial Finder from the Michael J Fox Foundation | foxtrialfinder.michaeljfox.org | Database of PD-related clinical trials that matches potential participants to actively enrolling studies. |
iRBD, isolated rapid eye movement sleep behavioural disorder; PD, Parkinson’s disease; RBD, rapid eye movement sleep behavioural disorder.