Table 1

RBD registries and resources for RBD clinical investigations

International RBD Study GroupIRBDSG.comOrganisation of RBD researchers representing registries of patients with RBD across the world.
North American Prodromal Synucleinopathy Consortium (NAPS Consortium)naps-rbd.orgResearch participant registry at 10 sites in the USA and Canada, with the goal of forming a trial-ready cohort for disease-modifying clinical trials in RBD.
Parkinson’s Progression Markers Initiative (PPMI)ppmi-info.orgPD biomarkers study which previously enrolled participants with iRBD; currently closed to enrolment. Next phase (PPMI2) to start in 2020.
ClinicalTrials.govclinicaltrials.govDatabase of privately and publicly funded clinical studies conducted around the world, a resource provided by the US National Library of Medicine.
Fox Trial Finder from the Michael J Fox Foundationfoxtrialfinder.michaeljfox.orgDatabase of PD-related clinical trials that matches potential participants to actively enrolling studies.
  • iRBD, isolated rapid eye movement sleep behavioural disorder; PD, Parkinson’s disease; RBD, rapid eye movement sleep behavioural disorder.