quality of life

H43 Providing and measuring the value of activity for people with huntington’s disease in care
Kirsty Page

Journal of Neurology, Neurosurgery & Psychiatry Sep 2018, 89 (Suppl 1) A81-A82; DOI: 10.1136/jnnp-2018-EHDN.221
H40 Experiences of huntington patients, who participate in a challenging briskwalking program
Jessie van der Bent, Anne Wil Heemskerk, Wilco Achterberg

Journal of Neurology, Neurosurgery & Psychiatry Sep 2018, 89 (Suppl 1) A81; DOI: 10.1136/jnnp-2018-EHDN.218
F25 Huntington’s disease health-related quality of life questionnaire (HDQOL): further validation
Aileen K Ho, Mike C Horton, G Bernhard Landwehrmeyer, Jean-Marc Burgunder, Alan Tennant, for the European Huntington’s Disease Network

Journal of Neurology, Neurosurgery & Psychiatry Sep 2018, 89 (Suppl 1) A48-A49; DOI: 10.1136/jnnp-2018-EHDN.129
Intensive inpatient rehabilitation for persons with Parkinson’s disease: last resort or pre-emptive strike?
Danique L M Radder, Jorik Nonnekes, Bastiaan R Bloem

Journal of Neurology, Neurosurgery & Psychiatry Aug 2018, 89 (8) 795-796; DOI: 10.1136/jnnp-2017-317812
Brain white matter fibre tracts: a review of functional neuro-oncological relevance
Natalie L Voets, Andreas Bartsch, Puneet Plaha

Journal of Neurology, Neurosurgery & Psychiatry Dec 2017, 88 (12) 1017-1025; DOI: 10.1136/jnnp-2017-316170
M1 Deutetrabenazine: update on first time use of SD-809 in huntington’s disease (First-HD) and alternative for reducing chorea in huntington’s disease (ARC-HD)
Claudia Testa, on behalf of the Huntington Study Group

Journal of Neurology, Neurosurgery & Psychiatry Sep 2016, 87 (Suppl 1) A101; DOI: 10.1136/jnnp-2016-314597.286
K29 Spreading of the awareness about huntington's disease in residential care facilities
Monika Baxa, Pavla Sasinkova, Martina Musilova, Jiri Hruda, Zdenka Vondrackova

Journal of Neurology, Neurosurgery & Psychiatry Sep 2016, 87 (Suppl 1) A89; DOI: 10.1136/jnnp-2016-314597.252
K1 Gaps between needs and provision of services in huntington’s disease: a cross-sectional population study
Marleen R van Walsem, Emilie I Howe, Jan Frich, Nada Andelic

Journal of Neurology, Neurosurgery & Psychiatry Sep 2016, 87 (Suppl 1) A79; DOI: 10.1136/jnnp-2016-314597.224
K7 A method for advance care planning with HD-patients
Saskia Demeulenaere, Josée Dachelet

Journal of Neurology, Neurosurgery & Psychiatry Sep 2016, 87 (Suppl 1) A81; DOI: 10.1136/jnnp-2016-314597.230
K8 Patient perspectives on research themes in advanced huntington’s diseases
David Engelhard, Wilco Achterberg

Journal of Neurology, Neurosurgery & Psychiatry Sep 2016, 87 (Suppl 1) A82; DOI: 10.1136/jnnp-2016-314597.231

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