Quality of Life measures for dementia

Health Qual Life Outcomes. 2003 Apr 23:1:11. doi: 10.1186/1477-7525-1-11.

Abstract

Over the past 10 years, several instruments developed specifically for the assessment of Quality of Life (QOL) in dementia have been introduced. The goal of the current review is to present, compare, and critique existing QOL measures for dementia populations to assist investigators and clinicians in selecting the optimal inventory for their specific needs. Nine measures are reviewed with a focus on conceptualizations of QOL, psychometric data, targeted patient population, and administration and scoring procedures. Critical discussion and comparison of the instruments is presented after the scales are described individually. Differences in definitions of QOL, assessment procedures, and methods that were used to establish the validity of instruments are highlighted. An important direction for future research on QOL scales for dementia is to establish their responsiveness to change over time. It will also be important to identify factors that affect reports of QOL, determine the how perceived QOL affects decisions regarding the care of dementia patients, and evaluate interventions to increase patient QOL.

Publication types

  • Research Support, N.I.H., Extramural
  • Review

MeSH terms

  • Activities of Daily Living / psychology
  • Aged
  • Alzheimer Disease / psychology
  • Caregivers
  • Dementia / psychology*
  • Humans
  • Psychometrics
  • Quality of Life*
  • Reproducibility of Results
  • Surveys and Questionnaires*